Sunday, 2 December 2012

Day 16: Date Confusion

Hello all

Not a great deal has happened since I last posted, but I have had a letter from the hospital that has confused me about the timing of my operation (it's almost like this letter should have been sent at the end of July, straight after my last appointment with my consultant and before it was decided to move the op forward a year).

Because I live in Kent currently but my letters are still sent to my parents address, my Mum rang the hospital straight away and my appointment with the surgeon in January still stands, to talk about me having the surgery in the coming Summer.

There are pros and cons to having the surgery both next Summer and the one after but every time there is confusion I get all worked up and upset.

If I have the surgery in the coming Summer (2013) it will be done sooner, there are less risks to my health and less chance of my heart enlarging more BUT, I'm worried I won't have recovered before going back to Uni at the beginning of October, and that's really important as it will the the start of my final year. I'm worried that I would have to wait a year and then finish my course the following year, which is something I really don't want to do. I want to graduate with my friends and enjoy living with my friends in final year as currently planned. I also want to start my life after Uni with my long term boyfriend Aidan as we are already starting to plan, when we both graduate in July 2014.

If I wait until the following Summer (2014) I will have finished my course and will have 10 or so weeks during recovery to be looking into my career and finding a job after I have finished everything at Uni with less pressure to have a job lined up straight after I leave Uni. On the other hand I will be worrying about upcoming surgery that will happen just weeks after my final exams, whilst I'm trying to do said exams and it may have an impact on finding a job as I will be recovering. There is also a chance that I will start having negative effects on my life and health should I wait the extra year for the surgery.

When I first found out that I would be having surgery I didn't think that the emotional strain on me would start so many months before I'm having the surgery. I'm finding it hard but I know that eventually the right decision will be made and I trust the doctors who suggest that the surgery should be done sooner rather than later.

Just to say, if you would like to follow my journey more frequently, I am going to set up the twitter account @CHDheartwarrior to share my feelings about my journey and any interesting things I find out about CHD along the way.

Stay strong Warriors xxx